Between a rock and a hard place..

We saw Grace today and she officially weighs 6 lbs. 4 oz.! She is still adorable but still having brady's and desats and they are talking about doing a pneumocardiogram on Thursday which is two probes placed in her stomach that monitor her heart, lungs and digestion at the same time. They really don't want to do it but may have to. It seems that she has reflux and when you feed her, she gulps down her food really fast and then apparently it comes right back up but she doesn't vomit or spit up. She holds her breath... which causes her heart rate to slow. The problem is that she did it an hour and a half after eating a few nights ago and we would never know that she was having an episode without the monitors. What if she were asleep and we missed it.. not good. With another infant in the room and us sleeping in between her feeds .. it is just too risky. So she stays until she can get through at least a full 24 hours without any events.

We are looking at the end of the week for discharge.. maybe. I held her today and just cried because the whole experience is heightened by her still being there. Austin's spot has already been taken by a new couple and their child and it pains me to see her still in her open crib, not being held enough and being alone. I can only be there for an hour a day because it takes me an hour to get there and an hour to get back. I can't be gone that long from Austin and Tommy so my time is split unfortunately. My heart aches for her and I will not be complete until she is home.

On a lighter note.. Austin had his first doctors appt today with the pediatrician and did great! He is now 6 lbs. 7oz. and is 19" long!!! He seems to be loving being at home.. he gets so much attention and Mimi (my mom) is loving holding him all the time.  We have been working as a team with Tom trying to cover Austin in the wee hours of night. I can't even imagine what it will be like to have two of them at home at the same time. We will cross that bridge when we get there. Right now, I am just glad to have at least one of them in our house .. We are all acclimating nicely. :)

I have added some pictures and will add more when Grace gets home.

Much love to all of you,

Erica and Tom